The last couple of weeks have been fun, but stressful. I love the holiday season, but that doesn’t mean that the business and stress of it all doesn’t get to me. I had a blast with my brother and his family, but since they live abroad, we try to…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
One thing that’s particularly difficult about managing Ehlers-Danlos syndrome (EDS) is that the same activity can affect me differently on different days. I try to keep track of patterns or movements that are likely to cause a pain flare, but unfortunately, it doesn’t always work. Some days, I can…

Recently, a reader asked me about Ehlers-Danlos syndrome (EDS) support groups and other organizations, and various ways of handling daily life with EDS. That got me thinking about my own support networks and how they’ve changed over the years. It also made me wonder how others with EDS approach…
Sometimes the soreness I experience in my body seems to come out of nowhere. I’ll be fine one day and then bam, I’ll wake up the next morning feeling superstiff and awkward for no apparent reason. The other night, I went to bed tired after a long and busy day,…
I can’t believe there’s only a couple of weeks until Christmas. It feels like this year has flown by! Every year on the weekend before Thanksgiving, I spend time with my two best friends from college. They’re the kind of friends you can go weeks or months without talking to,…
With Christmas rapidly approaching, I’m excited about the holidays — partly because I’ll feel more confident in what I eat this year. Between my alpha-gal syndrome and Ehlers-Danlos syndrome (EDS) food sensitivities, I sometimes have to struggle to enjoy holiday gatherings where food is served. But I’ve…
This week’s message is simple: Don’t get walking pneumonia from your students (or anyone else). A little while ago, I felt like I was coming down with a cold. I didn’t feel too bad, just a little tired and congested. I figured I’d be fine in a few days. I…
I’ve been thinking lately how awareness of Ehlers-Danlos syndrome (EDS) has changed over the years. Growing up, I’d never heard of it. The first time I did was as an adult, when a doctor at Georgetown University, where I’d been sent to search for a diagnosis, told me he…
It’s the time of year when illness starts whipping through the school halls like wildfire. Recently, we’ve had students out with seemingly everything you can think of, including flu, bronchitis, pneumonia, standard colds, and stomach bugs. As a teacher, I’m pretty well immune to most bugs after more than a…
As I wrote last week, October tends to be a stressful month at my job, where I work with students on their post-high school plans. With November approaching, I’m thankful I feel a little better after some tough Ehlers-Danlos syndrome…
The past few weeks at work have been enormously stressful. We school counselors often refer to this month as “Sucktober,” because it tends to be when the honeymoon of a new school year has worn off. Plus, big college application deadlines are looming, and student energy has begun to lag.
Some aspects of Ehlers-Danlos syndrome (EDS) are just weird. There are the expected symptoms — tight and sore muscles, chronic fatigue, frequent injuries, bruising — but there are also effects that, while related, don’t seem to make much sense. For me, one of those is the…
“Ms. D! Ms. D! Will you come play volleyball with us?” I heard this call on a recent Friday afternoon, when our school’s internet was down and I was supervising kids who were enjoying a little free gym time before heading home for the weekend. If I played, the game…
Recent Posts
- Global study reveals the complex web of health issues linked to hEDS February 5, 2026
- 73% of EDS patients second-guess pain, often after clinician skepticism: Study January 29, 2026
- My EDS pain seems to operate by different rules each day January 27, 2026
- New study urges platelet testing to manage bleeding risk in EDS January 22, 2026
- Another EDS flare is a real pain in the neck January 20, 2026
- Gut issues often drive hEDS patients to restrict their diets January 15, 2026
- I’ve been slowing down lately while continuing to recover from a fall January 13, 2026
- Compression garment use may reduce pain in hypermobile EDS, HSD: Study January 8, 2026
- I’m thankful for the lessons learned and progress made in 2025 December 23, 2025
- Walking saps more energy from hypermobile EDS, HSD patients: Study December 18, 2025