If you have Ehlers-Danlos syndrome (EDS), you likely know that the laxity of your tissues, and other symptoms, could present challenges during pregnancy. If you do decide to conceive, careful planning and management are key. What is EDS? EDS is a group of genetic disorders that affect…
Ehlers-Danlos syndrome (EDS) refers to a group of genetic disorders that affect the connective tissue. The disease is caused by genetic mutations that make the connective tissue weak. This affects different organs and systems in the body. About menstruation Menstruation is the monthly process a woman’s body…
Ehlers-Danlos syndrome (EDS) refers to a group of rare genetic disorders affecting the connective tissue that makes up the skin, joints, and blood vessels, and that gives structure to organs and tissues. Among the many types of EDS, each carries different risks of transmission to the next generation.
Ehlers-Danlos syndrome (EDS) can lead to fatigue and chronic pain for many patients, making it difficult for them to stay motivated to do things. Patients may also experience muscle weakness, which can impact their ability to perform everyday physical tasks. If you have EDS and struggle…
Having a good support network is important for maintaining physical and mental health. Positive support from friends, family, peers, and co-workers can make you more resilient when encountering stress, depression, and anxiety. Although specific studies on support networks in Ehlers-Danlos syndrome (EDS) patient populations have not been…
Many people with Ehlers-Danlos syndrome (EDS) deal with chronic pain and fatigue. This may contribute to the frequency of anxiety disorders among EDS patients. Indeed, some studies have indicated that anxiety affects more than half of those with hypermobile EDS. What is anxiety?…
Ehlers-Danlos syndrome (EDS) is the name given to a group of genetic diseases that affect the connective tissues. Depending on the type of EDS you have, you may have a number of symptoms disrupting your daily life. In some people with this disease, travel can be challenging.
Being diagnosed with a genetic medical condition like Ehlers-Danlos syndrome (EDS) can be difficult and worrying. One of the first questions patients usually ask is what the diagnosis means for their future and how the disease is going to affect their life expectancy. What is life expectancy?…
Being diagnosed with a chronic illness, such as Ehlers-Danlos syndrome (EDS), can be stressful and lead to depression in patients and their families. Patients may feel that they’ve lost control of their lives after their diagnosis, which can make them feel anxious. Practicing self-care is important…
Living with a chronic disease like Ehlers-Danlos syndrome (EDS) can be very stressful. Some people may feel like they’ve lost control over their life after getting a diagnosis. Here are some tips to help reduce stress, and improve your mental and physical health. Get enough sleep It’s easy…
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