Health Insights

Managing Ehlers-Danlos syndrome (EDS) can be challenging, especially in a school environment. Many parents find it difficult to ensure that their child receives a good education while balancing safety and disease management. Developing an individualized education plan with the school can help to ensure that your child…

Eating a “heart-healthy diet” can be important for people with Ehlers-Danlos syndrome (EDS), a rare disease that causes weakness in the connective tissue that gives structure to different organs and tissues in the body. In EDS, patients’ blood vessels may be weaker than normal, meaning that increases…

Ehlers-Danlos syndrome (EDS) refers to a group of rare diseases that affect the connective tissues that give structure to the body’s joints, blood vessels, skin, organs and tissues. Although each type of EDS has different symptoms and rates of progression, patients often have fragile skin and…

Ehlers-Danlos syndrome (EDS), a group of genetic disorders that affect connective tissue, has symptoms that can range from mild to severe. Depending on the type of EDS a child has and the severity of its symptoms, special accommodations may be necessary to safely attend school. One tool…

Ehlers-Danlos syndrome (EDS) is the name given to a group of rare disorders that affect the connective tissue that provides structure to joints, skin, blood vessels, and other organs. People with EDS have fragile skin and loose joints, raising the risk that common activities, like playing musical instruments,…

Blood pressure is determined by the amount of blood your heart pumps and the resistance to blood flow in your blood vessels. High blood pressure increases the risk of heart attack and stroke, as well as heart failure. High blood pressure can be even more dangerous for…

Physiotherapy is one of the treatments that may help patients with Ehlers-Danlos syndrome (EDS), a rare genetic disease that affects the connective tissues providing structure to areas of the body that include the joints. Because of the loss of this structure, EDS patients can easily overextend and dislocate…

Ehlers-Danlos syndrome (EDS) is a rare disease that affects connective tissue,  including the cartilage of the joints. Patients with EDS have fragile skin and tissue, which increases the risk that normal activities may cause a joint to dislocate. What is joint dislocation? Joints are the points at which…

Ehlers-Danlos syndrome (EDS) is a rare disease that affects connective tissue. Patients with EDS have fragile skin and tissues, which can put them at high risk for internal bleeding, even without accident or injury. What is internal bleeding? Internal bleeding occurs when patients bleed into their chest or…

For people with Ehlers-Danlos syndrome (EDS), it’s important to wear sunscreen while outdoors to protect their very fragile skin as overexposure to the sun can cause skin damage. What is Ehlers-Danlos syndrome? Ehlers-Danlos is a rare disease that affects the connective tissue that gives structure to different organs and…