News

Being lonely is strongly associated with worse mental and physical health in people with hypermobile Ehlers-Danlos syndrome (hEDS), a new study suggests. Support from friends appears to play a meaningful role, while dog companionship may provide emotional benefits for some individuals. “Our findings suggest that loneliness is a potent…

Women at midlife and older age with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD) experience long diagnostic delays, multiple coexisting health conditions, and poor health-related quality of life, according to a U.S. survey. The survey, conducted by Linda K. Anderson, PhD, an adjunct assistant research professor…

Multiple genetic changes across three major biological systems appear to contribute to hypermobile Ehlers-Danlos syndrome (hEDS), according to a new study that used advanced genetic testing and artificial intelligence (AI). As in other types of EDS, researchers found changes in genes involved in the production of collagen, a key…

People with hypermobile Ehlers-Danlos syndrome (hEDS) face a significantly higher risk for a wide range of complex health issues, including heart rate disorders, digestive problems, and postural orthostatic tachycardia syndrome (POTS), according to a new global study. Based on survey data from more than 2,500 patients, the research highlights…

People with Ehlers-Danlos syndrome (EDS) frequently experience self-doubt about their pain and other symptoms, often in the context of skepticism they encounter from clinicians, according to a new U.S. study. The research found that nearly three-quarters of participants questioned the severity — and sometimes even the reality — of…

The functioning of platelets, the tiny cell fragments that help blood clot, is impaired in people with Ehlers-Danlos syndrome (EDS), likely contributing to an increased risk of bruising and bleeding, a new study reveals. Researchers found that altered receptor signaling in platelets appeared to drive these defects in both…

People living with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HDS) often follow dietary patterns that are high in protein and fat but low in calories, fiber, and essential vitamins. A new study from the U.K. suggests these restrictive eating habits,…

Compression garments are well tolerated and may reduce pain and the use of pain medications in people with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD). That’s according to a recent study, which demonstrates that treatment response, reported in 80% of participants, was associated with a longer time…

Walking requires significantly more energy for people with hypermobile Ehlers–Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD), according to a new study from Canada. According to the findings, people with hEDS/HSD activate their calf muscles more to stabilize a weaker ankle joint during walking and rely…

People with Ehlers-Danlos syndrome (EDS) or generalized hypermobility spectrum disorder (HSD) who experience more severe pain tend to use more cannabis and cigarettes, according to a study by researchers in Canada. The study, “Associations Between Pain and Substance Use Among Individuals Diagnosed with Ehlers-Danlos Syndromes or Generalized Hypermobility…