News

Blocking certain steroid hormone signaling helped reduce the risk of life-threatening blood vessel rupture in a mouse model of vascular Ehlers-Danlos syndrome (VEDS), according to a new study. Unexpected tears in the aorta, the largest blood vessel in the body, are a major concern in VEDS. Using a mouse…

Celiprolol may help lower the risk of fatal vascular complications while also providing psychological reassurance for people with vascular Ehlers-Danlos syndrome (vEDS), according to the first study of the treatment conducted outside Europe. In the Japanese study, nearly half of the patients experienced no vascular or nonvascular complications…

Difficulty swallowing, or dysphagia, can be a significant problem in hypermobile Ehlers-Danlos syndrome (hEDS), and may occur alongside gastrointestinal issues that can require supplemental or alternative nutrition or hydration, according to a small U.S. study. Dysphagia appeared to be related to underlying hEDS symptoms and related conditions, including gastrointestinal…

Dismissive attitudes from healthcare providers can lead people with Ehlers-Danlos syndrome (EDS) to doubt their own experiences of chronic pain, a study found. Researchers found that EDS patients facing skepticism from care providers will often end up minimizing their own pain — and as a result, their pain doesn’t…

May is EDS Awareness Month, an annual event in which advocates around the world work to increase awareness of Ehlers-Danlos syndrome (EDS) and other hypermobility spectrum disorders, and fundraise on behalf of those living with these genetic conditions. For this year’s awareness month, the Ehlers-Danlos Society — a global…

Dentists may help diagnose Ehlers-Danlos syndrome (EDS) by identifying certain oral changes during routine examinations. EDS patients were significantly more likely to have inflamed gums, underdeveloped mouth tissues, jaw joint pain, jaw joint movement and dislocations, and unusual changes in their tooth roots and inner tooth structure, according to…

People with hypermobile Ehlers-Danlos syndrome (hEDS) may have impaired cognitive function, including lower attention and executive function abilities, a new study in Germany shows. Among hEDS patients, executive functioning — the set of cognitive processes used to solve problems, make plans, and manage emotions — appeared to depend on…

Proteins in the serum of adults with hypermobile Ehlers–Danlos syndrome (EDS) show patterns similar to those in adults with hypermobility spectrum disorder (HSD), with dozens differing from healthy individuals, supporting the idea that they may be part of a shared disease spectrum in a study with patients from the…

The Ehlers-Danlos Society is teaming up with Harvard Medical School and Brigham and Women’s Hospital in an effort to improve care for people with Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD). The ultimate goal is to develop new models that support earlier recognition in primary care, more…

Heavy menstrual bleeding affects nearly 9 in 10 women with Ehlers-Danlos syndrome (EDS), with half experiencing severe bleeding, a new study reports. Despite this high burden, many women experience extended delays in EDS diagnosis — often after emergency visits, transfusions, and major surgeries to treat heavy menstrual bleeding.