News

Two years of daily irbesartan, a long-acting oral blood pressure medication, reduced the risk of severe arterial events by 50% in adults with vascular Ehlers-Danlos syndrome (vEDS). That’s according to the results of the Phase 3 ARCADE (NCT02597361) trial, which tested the medicine on a background of celiprolol,…

Insomnia and depression strongly contribute to the chronic fatigue that affects about 80% of adults with  hypermobile Ehlers-Danlos syndrome (hEDS), interfering with their daily functioning and mental health, a study in Italy shows. The study compared fatigue between people with hEDS and those with another condition that also affects…

People with Ehlers-Danlos syndrome (EDS) can safely undergo total joint replacement surgery and achieve significant gains, among them “[improved] quality of life in … patients who had marked arthritis,” according to a new review. However, EDS patients who have this procedure — known as arthroplasty, it’s when a joint such…

Including the experiences and needs of people with hypermobile Ehlers-Danlos syndrome (hEDS) or generalized hypermobility spectrum disorder (HSD) in treatment planning could lead to better care, and this could translate into better quality of life for these patients, the findings of a new U.S. survey study suggest. “The current…

More than half of children with vascular Ehlers-Danlos syndrome (vEDS) are diagnosed through genetic testing after a family member is found to have the disease, a study found. The remaining patients receive their diagnosis following a serious clinical event that requires medical intervention or due to having certain clinical…

Within three months of an Ehlers-Danlos syndrome (EDS) diagnosis, many patients and their parents felt there was a lack of related educational materials, which was a barrier to their knowledge and comfort in managing the condition, according to a new survey study conducted by U.S. researchers. The respondents also…

People with Ehlers-Danlos syndrome (EDS) living in the U.S. face high healthcare costs, with the annual median out-of-pocket expense exceeding $13,000, a study found. The findings “highlight the magnitude of the burden of health care spending on patients with EDS,” with “both direct and indirect costs of accessing and…

Scientists have discovered three subgroups related to different gastrointestinal problems among people with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorder (HSD), a study reveals. Some people had hEDS or HSD without the symptoms, while others also had irritable bowel syndrome (IBS), a condition associated with abdominal cramps, bloating,…

Adolescents with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) are more sensitive to pain in different areas of their body, a recent study shows. Exercise was found to help reduce pain sensitivity in both groups for the muscles involved, though not equally in the muscles tested.

Hypoglycemia, or low blood sugar, may be among symptoms of Ehlers-Danlos syndrome (EDS), according to a case report. A woman with hypermobile EDS (hEDS) came to a clinic experiencing significant neurological symptoms related to low blood sugar that occurred most often after eating or physical activity, but was…