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People with hypermobile Ehlers-Danlos syndrome (hEDS) may have impaired cognitive function, including lower attention and executive function abilities, a new study in Germany shows. Among hEDS patients, executive functioning — the set of cognitive processes used to solve problems, make plans, and manage emotions — appeared to depend on…

Proteins in the serum of adults with hypermobile Ehlers–Danlos syndrome (EDS) show patterns similar to those in adults with hypermobility spectrum disorder (HSD), with dozens differing from healthy individuals, supporting the idea that they may be part of a shared disease spectrum in a study with patients from the…

The Ehlers-Danlos Society is teaming up with Harvard Medical School and Brigham and Women’s Hospital in an effort to improve care for people with Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD). The ultimate goal is to develop new models that support earlier recognition in primary care, more…

Heavy menstrual bleeding affects nearly 9 in 10 women with Ehlers-Danlos syndrome (EDS), with half experiencing severe bleeding, a new study reports. Despite this high burden, many women experience extended delays in EDS diagnosis — often after emergency visits, transfusions, and major surgeries to treat heavy menstrual bleeding.

People with hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorder (HSD) may experience greater physical and mental health challenges when they also have autism, a survey study in the U.K. suggests. Drawing on responses from more than 1,700 participants, researchers found that autistic participants more often reported pain, sleep…

Males with vascular Ehlers-Danlos syndrome (vEDS) face a higher risk of certain blood vessel complications and poorer survival than female patients, according to a large study. By analyzing data from more than 550 people with vEDS, researchers found that males were more likely to develop aortic and arterial disease…

Being lonely is strongly associated with worse mental and physical health in people with hypermobile Ehlers-Danlos syndrome (hEDS), a new study suggests. Support from friends appears to play a meaningful role, while dog companionship may provide emotional benefits for some individuals. “Our findings suggest that loneliness is a potent…

Women at midlife and older age with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobile spectrum disorder (HSD) experience long diagnostic delays, multiple coexisting health conditions, and poor health-related quality of life, according to a U.S. survey. The survey, conducted by Linda K. Anderson, PhD, an adjunct assistant research professor…

Multiple genetic changes across three major biological systems appear to contribute to hypermobile Ehlers-Danlos syndrome (hEDS), according to a new study that used advanced genetic testing and artificial intelligence (AI). As in other types of EDS, researchers found changes in genes involved in the production of collagen, a key…

People with hypermobile Ehlers-Danlos syndrome (hEDS) face a significantly higher risk for a wide range of complex health issues, including heart rate disorders, digestive problems, and postural orthostatic tachycardia syndrome (POTS), according to a new global study. Based on survey data from more than 2,500 patients, the research highlights…