News

Asthma medication eases pain, boosts life quality for hEDS patient

A 33-year-old woman with hypermobile Ehlers-Danlos syndrome (hEDS) experienced less systemic (body-wide) pain and inflammation, as well as greater overall functioning after starting treatment with omalizumab, a medication for asthma and allergies, according to a recent report. Omalizumab is an injectable therapy that blocks the interaction of immunoglobulin…

Anti-inflammatory telitacicept effective for woman with aEDS

Telitacicept, an anti-inflammatory medication, successfully treated a woman with arthrochalasia Ehlers-Danlos syndrome (aEDS), a case study reports. Researchers speculated the disease-causing mutation that led to defective collagen protein may have triggered an immune response that worsened her symptoms, which were then reduced upon telitacicept treatment. The case study, “…

Long COVID symptoms lead to hEDS diagnosis in small study

Clinicians should test for hypermobile Ehlers-Danlos syndrome (hEDS) or hypermobility spectrum disorders (HSD) if their patients continue to show persistent symptoms after infection with SARS-CoV-2, the virus that causes COVID-19, according to a small report. “We conclude that hEDS/HSD should be considered … especially in patients of female gender…

Psychological interventions may help with EDS pain, life quality

Psychological interventions to address pain and quality of life for people with Ehlers-Danlos syndrome (EDS) and related conditions are most effective when delivered alongside physiotherapy in an outpatient or community setting, according to a review study. “The results confirmed the primary aim, in that psychological interventions are successful at…

Segal Foundation commits $6.7M to advance EDS research

As part of its commitment to support rare disease research, the Mike and Sofia Segal Foundation has pledged $6.7 million to The Ehlers-Danlos Society to advance scientific research in Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorders (HSD). The “transformative” commitment includes a number of gifts to further and…

Blocking sensory nerve fibers eased pain responses in mice

Abnormally high sensitivity of a type of sensory nerve fibers is behind the heightened pain responses to harmless light touch that were observed in a mouse model of classical-like Ehlers-Danlos syndrome (clEDS), a study shows. This abnormal pain sensation, called mechanical allodynia, is a main symptom of neuropathic pain…