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Recent Posts

• This Past School Year, I Had to Prioritize Self-care June 21, 2022
• Imbalances in Sensory Signals Linked to Chronic Pain in Hypermobile EDS June 20, 2022
• Genetic Testing May Identify New Gene Mutations in EDS: Study June 13, 2022
• NORD’s ‘Living Rare, Living Stronger’ Patient, Family Forum Set for June 26 June 6, 2022
• Ehlers-Danlos Society Awards $400K for New Research Into hEDS, HSD May 23, 2022
• Acer Reaches Agreement With FDA; Phase 3 Trial of Edsivo to Begin Soon May 16, 2022
• ‘Acts of Awareness’ Welcome in May, Marking EDS and HSD Month May 2, 2022
• Organizations Rally to Help Ukrainian Rare Disease Patients April 29, 2022
• ‘Player Like Me’ Showcases Healing Potential of Gaming With EDS April 25, 2022
• Europe Awaits Proposed New Framework for Sharing Health Data April 18, 2022