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Recent Posts
- ‘Running for Rare’: NORD a Charity Partner of 2021 NYC Marathon September 1, 2021
- Adjusting to the Challenges of a New School Year August 31, 2021
- ‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases August 31, 2021
- Study: Classical EDS Diagnosis Requires Full Clinical, Genetic Exam August 30, 2021
- Neurological Issues in Spotlight at Upcoming EDS ECHO Summit Event August 23, 2021
- Register Now for Global Genes’ RARE Patient Advocacy Summit August 18, 2021
- I Realized That I Need a New Mattress August 17, 2021
- Patient Draws on Her Own Experience to Help Others Through Podcast August 16, 2021
- I No Longer Feel Guilty About Going to the ER August 13, 2021
- NORD Rare Disease Summit, Online Oct. 18-19, Open for Registration August 11, 2021