Emily Malcolm, PhD,  —

Many people with Ehlers-Danlos syndrome (EDS) deal with chronic pain and fatigue. This may contribute to the frequency of anxiety disorders among EDS patients. Indeed, some studies have indicated that anxiety affects more than half of those with hypermobile EDS. What is anxiety?…

Ehlers-Danlos syndrome (EDS) is the name given to a group of genetic diseases that affect the connective tissues. Depending on the type of EDS you have, you may have a number of symptoms disrupting your daily life. In some people with this disease, travel can be challenging.

Being diagnosed with a genetic medical condition like Ehlers-Danlos syndrome (EDS) can be difficult and worrying. One of the first questions patients usually ask is what the diagnosis means for their future and how the disease is going to affect their life expectancy. What is life expectancy?…

Being diagnosed with a chronic illness, such as Ehlers-Danlos syndrome (EDS), can be stressful and lead to depression in patients and their families. Patients may feel that they’ve lost control of their lives after their diagnosis, which can make them feel anxious. Practicing self-care is important…

Living with a chronic disease like Ehlers-Danlos syndrome (EDS) can be very stressful. Some people may feel like they’ve lost control over their life after getting a diagnosis. Here are some tips to help reduce stress, and improve your mental and physical health. Get enough sleep It’s easy…

Managing Ehlers-Danlos syndrome (EDS) can be challenging, especially in a school environment. Many parents find it difficult to ensure that their child receives a good education while balancing safety and disease management. Developing an individualized education plan with the school can help to ensure that your child…

Eating a “heart-healthy diet” can be important for people with Ehlers-Danlos syndrome (EDS), a rare disease that causes weakness in the connective tissue that gives structure to different organs and tissues in the body. In EDS, patients’ blood vessels may be weaker than normal, meaning that increases…

Ehlers-Danlos syndrome (EDS) refers to a group of rare diseases that affect the connective tissues that give structure to the body’s joints, blood vessels, skin, organs and tissues. Although each type of EDS has different symptoms and rates of progression, patients often have fragile skin and…

Ehlers-Danlos syndrome (EDS), a group of genetic disorders that affect connective tissue, has symptoms that can range from mild to severe. Depending on the type of EDS a child has and the severity of its symptoms, special accommodations may be necessary to safely attend school. One tool…

Ehlers-Danlos syndrome (EDS) is the name given to a group of rare disorders that affect the connective tissue that provides structure to joints, skin, blood vessels, and other organs. People with EDS have fragile skin and loose joints, raising the risk that common activities, like playing musical instruments,…