In a recent column, I described how my massage therapist and I realized that the cause of my back and foot pain was actually my hip. Thankfully, since that session, the pain has diminished. I had another session to work on it more, and I’m hopeful we’re moving in…
Black and Blue Ribbons
— Karen Del Vecchio

An avid equestrian and educator based in Virginia, Karen Del Vecchio was diagnosed with Ehlers-Danlos syndrome in 2009 after years searching for a diagnosis that explained her symptoms. Since her diagnosis at the Johns Hopkins Connective Tissues Disorder Clinic, she has worked to find ways to manage her symptoms while still maintaining an active lifestyle. Karen enjoys working with her students, riding and caring for her two horses, Cherry and Spotty, and connecting with others in the rare disease community through her writing.
I’ve reached a plateau in my recovery from a badly broken rib and sprained diaphragm that’s been complicated by my Ehlers-Danlos syndrome (EDS), and I’ve been searching for what to do next. Recently, I went in for an evaluation with a physical therapist I’ve known for years, who…

I’ve learned to pay attention so I can tell the symptoms of my Ehlers-Danlos syndrome (EDS) from other health issues. For about a week, I’d been feeling extra tired and sore, but that’s not necessarily unusual. Getting out of bed in the morning was particularly difficult, and I…
I’ve been dealing with a lot of muscle pain along the bottom of my ribs for the past couple of months. I don’t recall when or how it started, but once it was there, it seems like it just didn’t want to leave. Even regular bodywork, usually my ticket to…
Every time I think I’ve gotten a handle on the patterns of my Ehlers-Danlos syndrome (EDS), I’m pretty sure the universe laughs at me. Oh, you think you have it figured out? What about this? That’s pretty much what happened last week when I found myself surprised following a…
One thing I know for sure is that I have a much higher pain tolerance than most people. I guess that’s probably true for most people who manage chronic pain. They either learn to deal with it as best they can or they can’t function. What I didn’t consider…
The past few weeks have been a whirlwind. A couple of weeks ago, for instance, I went out of town for a funeral and then flew directly from there to a conference, where I spent a few days before returning home. The result from that travel? Exhaustion, a cold, and…
I feel like my body’s done a flip-flop. Usually my right side causes me the most problems. I have a badly damaged shoulder, hip, finger, hand, and ankle, all on my right side. My left side is normally the “good” one, with only occasional flare-ups. In the…
I’ve said many times that chronic fatigue is one of the toughest parts of living with Ehlers-Danlos syndrome (EDS). It’s so tough to wake up just as exhausted as I was when I went to sleep. I’ve noticed recently, though, that my fatigue is a little bit…
“Hey, how did you get that bruise on your face?” I’ve probably gotten that question at least a dozen times in the past few days, and I’m sure many more wanted to ask me but didn’t. It’s not a big bruise — maybe the size of a dime — on…
Over the past year and a half or so, my horse Cherry has been through a lot. Back in December of 2021, we found out she had some pastern arthritis going on, but that wasn’t unusual for a horse then 14 years old. We helped her with anti-inflammatory medication…
Heading back to work at school at the end of summer is always an adjustment. As a college counselor and high school history teacher, having summers off is great, but it means quickly getting back into the swing of things. I try to make the most of my time during…
A few weeks ago, while walking through the barn at the farm where I live, I felt a twinge in the bottom of my right foot. I ignored it, figuring I’d probably just taken a funny step. But as the day went on, it bothered me more and more,…
Recent Posts
- New study finds autism tied to worse health outcomes in hEDS, HSD March 12, 2026
- New study finds higher vascular complication risk in males with vEDS March 5, 2026
- Zeroing in on ‘fight or flight’ as the reason for my slow recovery from injury March 3, 2026
- Loneliness strongly linked to worse physical and mental health in hEDS February 26, 2026
- The ‘aches and pains forecast’ that validated my EDS symptoms February 24, 2026
- HSD, hEDS tied to diagnostic delays, poor quality of life in aging women February 19, 2026
- I’m trying different types of physical therapy to keep making progress February 19, 2026
- Genetic changes across 3 biological systems may drive hypermobile EDS February 12, 2026
- Are fatigue, pain, and soreness an EDS flare-up or a winter illness? February 10, 2026
- Global study reveals the complex web of health issues linked to hEDS February 5, 2026